Post stroke fatigue is weird. Everyone knows what it feels like to get tired but this is different. When I get tired it’s like my whole body shuts down. I just stop working. I hear things weirdly, like I actually hear a noise when someone talks. It’s so weird. I just have to lay down sometimes. Right after the stroke and for a few months I slept a ton. I think I was asleep for like 3 months straight. About 6 months later I started experiencing insomnia, that was new for me. The Kangen water fixed that. Now I’m on a normal sleeping schedule but I have to take a nap everyday. I have to nap, I have no choice. I mean I sleep more than the average bear. I wake up everyday at about 9, sometimes earlier, sometimes later. I go to bed around 11. Again, sometimes earlier, sometimes later. I’ve learned not to make plans with someone to do 2 things in one night. Like dinner and a movie…usually both things will be too much, I’ll get too tired. So I’ll do one or the other. Sometimes it’s fine though, and it’s getting a lot better. It’s hard dealing with this because people that have never had a brain injury don’t understand how tired I get but for the most part I’m around pretty understanding people. I really really hope I don’t have to deal with this fatigue forever but I imagine it will continue to get better.
- My Truth About Lupus Fatigue (butterflywarrior.typepad.com)
- Fatigue and Cognitive Dysfunction (jenlynn401.wordpress.com)