I was in the hospital for a month.  Now, when I was in the hospital I didn’t understand what was going on.  I didn’t understand what had happened to me, I didn’t understand my disabilities, anything.  I really didn’t, I just knew I was in hell.  I have what’s called an intention tremor.  That means that at the end of a purposeful movement I shake – a lot.  For example, if I try to pick up a glass of water with my right hand, I start shaking wildly and the water goes everywhere.  If I carry a liquid with my right hand it has to be covered.  Both sides of my body are affected, but my left side much less so.  When I was in the hospital, my left side was pretty bad, it’s not anymore. Everyday in the hospital, I chose my menu for the next day. Everyday, like I had for the first 29 years of my life, I chose cereal for breakfast.  I should not have had that option.  A 30-year old who had just had a massive, bilateral cerebellar stroke which resulted in a severe intention tremor should not have been given the option to order cereal for breakfast.  And don’t get me started on soda.  Soda should not be in a hospital.  We need a lot more individualization in hospitals.  It might take a little more time to create customized menus but I think the hospital staff can spend that time.  Some of those patients are in absolute, extreme hell and the details will make a difference.  I understand that I was an extreme case but people with extreme cases need it the most.  Some of my hospital staff was absolutely wonderful.  Rhonda, if you ever read this, thank you for everything. Most sucked.  🙂  I shouldn’t be able to say ‘most.’

Categories: Brain stuff, Stroke stuff

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