2 Years

WordPress just sent me a notification that today is my 2-year anniversary of starting the blog.  I remember reading somewhere that the majority of personal blogs are discontinued within 2 years because of lack of interest.  So good for me I guess!  This blog has changed DRASTICALLY from when I started it.  I started it because I was an arrogant brat who thought I knew something.  Little did I know that I knew nothing and had a hell of a lot to learn.  Now this blog has kind of turned into a movement of sorts.

A stroke is not just an injury.  If you break a bone, tear a ligament, or mess up a joint somehow you will probably be all better in a few months and have very minimal, if any, lifelong deficits.  That’s provided you have a good orthopedic surgeon and physical therapist.  If not, you’re screwed.  I did not just get injured.  This event nearly ended my life and RADICALLY, DRASTICALLY, MONUMENTALLY changed both me and my life forever.  The neurologists didn’t offer me anything in terms of advising me on how to get better.  I was told by multiple top-rated neurologists and “stroke experts” in the entire WORLD that I was not going to recover anymore at a year and a half.  I was not going to recover anymore my ASS.  Don’t say that to anyone else neurologists that “treated” me.  If I learn of you saying that to anyone else I will drive to downtown Pittsburgh, walk into your office and we will have words.  I promise you that.  You’d think, you’d imagine that an “expert” on strokes would have mentioned meditation and the MOUNTAINLOAD OF EVIDENCE that exists to support how meditation can fix the brain.  You’d think a brilliant neurologist would have mentioned that.  You’d think.  But no.  No one said that to me.  Now I’m saying it and will not stop saying it until it is taken seriously by the medical community.  Actually, even then I will not stop saying it.

Categories: Brain stuff, Health, Recovery, Rehab, Stroke stuff

Tags: , , , , , , , ,

22 replies

  1. You and I don’t want to follow Dale Carnegies advice on How to Win Friends and Influence People, basically by making nice. I will make nice when they prove that they know more than I do.

  2. Niceness is way overrated in my opinion. Real kindness, on the other hand, is in distressingly short supply, especially in the medical profession. Amy, Dean – keep on kicking ass. You are both doing something very right.

  3. Julia, I agree. I know lots of people who equate superficial niceness (talk) with support. Personally, I think being honest without being cruel is the kindest way to support someone. and, as a reflection of love, kindness matters.

  4. Hi all,
    I just wanted to share something that my husband did today and made him really happy. He drove to the store got a sprite and iTunes card all by himself. I was nervous when he told me he wanted to go but at the same time I felt he will be fine. When he got to the store he call me to tell me he made there and tears came out he was happy and I was even happier when he came back home. My husband weak side is his right side but he is left handed so he can do wonders with his left hand, he has aphasia.
    For the ones who are driving now after their stroke who gave you a green light to drive again? Do you think was irresponsible to let him drive? He is 44 years old and he always tell me how to get to places.
    Congratulation Amy on your 2 years blog!
    Thanks for listening

    • Aww Yadira that’s awesome. Nobody gave me the green light to drive again, I just drove again. It wasn’t irresponsible, he knows what he can and can’t do.

    • Yadira, that’s wonderful; it gives him a shot at being independent again. I live in Massachusetts and was required to give up my license for 6 months; the only way the state knew that I’d had a stroke and had to give it up was because I applied for a handicap parking placard. I think if you go with him when he drives and you think he’s competent, you can relax and let him go. You might want to find out your state law first. I had to put adaptive equipment on my car and take the driver’s test to get my license back; it’s a restricted license that says I can drive only an adapted automatic-transmission car. BTW, after 2 years of driving, I’m still not comfortable driving in some conditions: bad weather, the dark, fast highways and heavy traffic.

      • We used to live in Michigan and now we live in Georgia so his driving license is from MI, he will have to renew it and that’s why I’m concern if they will allow him or not.
        Reading from people who is in a similar situation as my husband and can express their thought has helping me a lot and you guys educate me as well. So thank you for sharing the good, the bad and the ugly.

        • There’s a whole lotta ugly!

        • I moved from MN to MI and when I went to get a license there I just had to do the vision test and hand in my old license, no written test of any kind. By then, there was no way of identifying I had a stroke unless you saw me walk and knew what a stroke gait looks like.

    • I did take a driving exam but that only proved I had enough skill to mentally take in all the distractions and still drive. It was a waste because there was no practice but my ex required it to allow me to drive again. I never checked with the state to see if my license was impaired or revoked. If I ever needed it,I was going to use that exam to prove I was competent. I never back up. I do drive anytime, anyplace but then I’m probably an outlier. And stubborn, no one is going to tell me what I can’t do. Started driving 2 years post-stroke and now at 8 years I can and do drive all day.

      • What I am concern is my husband aphasia so if he has to do a written test I know he is going to fail, but if is just him driving I know he is going to do well. I told his sister about the driving and she wasn’t to happy about it, she is 12 years younger than him and all of the sudden they want to treat him like a child and tell him what he can and can’t do.
        I’m glad you and Amy aways stand up for yourselves and are the voices of others.

  5. Yadira,
    That’s awesome…such a huge milestone!!! I agree with Barb. Checking to see ur local laws will eliminate any responsibility if god forbid something happened. Here in CA, we are required to self-report any condition that could affect driving if your doctors don’t. Nobody reported me, but I knew I couldn’t drive for a long time. After a year, I took a driving class for brain injured people. I wanted to be sure I was safe cuz driving is SOOO dangerous and I would also be driving my son. Anyway, I took the class and passed their tests. I reported myself to the DMV with my certificate from the class and they said I could drive. I cried my eyes out the day I passed the class…driving is mandatory here in LA. I went back to driving very gradually. I still can not drive for a long time, its really draining, but I can go most places I need to go.

    • I’d been looking on the Internet but I guess I’m not looking the right way since I haven’t found the requirements for the state of Georgia. He has an appointment with a new neurologist in 2 weeks but I am even afraid to ask if it is ok for my husband to drive again, I don’t trust them or we haven’t found one to trust. Seriously I trust you guys more because you are a living probe of what can be done.

  6. Amy I have been letting the meditation go with my busy life. It has been a mistake because I think I need it more than ever. Congrats on your 2 years of blogging. many more to come I am sure.

  7. Yaderia,
    I found this form online for Georgia. Its very similar to the one I needed for CA. I would be skeptical of the doctors too. The “driving rehab” class I took was taught by an OT. Maybe you can ask the therapists if they know of any “driving classes” in your area. They are probably more prepared to answer your question than any doctors anyway. I lost my car in the parking lot a few times which made me wonder if I was safe to even be driving, but since I had passed their rigerous testing..I figured I was probably safe.
    And Amy, congrats on the 2 years!! You are doing a good thing by sharing and inspiring others!
    Lastly, everyone, there is a free meditation series going on now. Its offered by Oprah, Deepak Chopra, and the Chopra center. You can Google it to find the link. They offer several free series a year. I always try to do them…not sure if it helps, but there’s a lot of research like Amy said that supports meditation for brain recovery.

  8. Amy, for two years you have helped make a lot of positive impact on people, including myself. Thanks for sticking around! 🙂

    I love this point: “A stroke is not just an injury.” That is such a simple sentence, yet so powerful! Thanks for the jolt of clarity.

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