Medical Establishment

I received an email yesterday from someone whose family member recently had a stroke and he was looking for information.  He has looked into some alternative treatments and said this…
“I’ve been researching such treatments as hyperbaric oxygen therapy as well as Chinese Scalp acupuncture to treat her paralysis.  However, I’m a little leery because those methods have not been endorsed by the medical establishment.”
This was my reply…..
“Unfortunately the majority of things besides therapy that will help are not endorsed by the medical establishment.  You’re going to have to let go of the thinking that physicians are now the most knowledgeable people and the ones to go to for help.  That’s not the place to depend on for information.  It’s other people that have been through this. It was very irresponsible of her doctors to say that there will be no more recovery.  I highly, highly recommend getting her involved with some sort of meditation practice.”
I remember the days of scouring the internet and writing emails to people hoping for some help.  All of my emails were to the wrong people.  If you or your loved one is within the first year, maybe 2 years of a stroke, you don’t know yet.  You don’t know how very much on your own you are.  You have to find your own ways to get better and quite a bit of it doesn’t involve Western Medicine.  Neurological injuries are a bitch and a half.  It takes a hell of a lot more than going to some doctor and therapy appointments to even remotely overcome something like this.



Categories: Brain stuff, Health, Recovery, Rehab, Stroke stuff

Tags: , , , ,

17 replies

  1. Good that he’s researching, but too bad he has to.

  2. So true, when I first started scouring the web for how to recover I naively thought that the answer was out there somewhere. It was devastatingly depressing to finally figure out that no one in the world knew exactly how to recover. Damned naked emperor.

  3. One gets some idea of how knowledgeable the medical establishment is in regard to stroke by quoting one of them when addressing convalescence: “no one understands how that works”.

    But, it works. I know. I’m less than 2 yrs. out and I know.

    • It must be magical how neuroplasticity works. We have no clue how a neighboring neuron decides to help with a task.

      • “Magic,” the perfect answer to “but, how can I recover?” As good as “every stroke is different, every patient is different, and every recovery is different.” Just another way to say, “I don’t know.”

        • I wish some people could learn the phrase “I don’t know” instead of pretending like they do know.

          • The only doctors I ever respect are the one’s that are smart enough and humble enough to say, “I don’t know.” I don’t appreciate the smoke blowing most try to get by with.

            • Zack asked his neurologist at his first follow up how much he would recover. She said, “we used to think that recovery stopped. But now we know that the brain continues to heal and make new neurons. You will keep getting better, but I don’t have a magic crystal ball to tell you how much you will recover or how long it will take.” Then I asked how “bad” his injury was and she said, with hesitation, “it was…pretty bad.”

              I effing hate brain injury. But I am thankful for a doctor who told us the truth.

  4. I agree with Barb…it’s good that he is researching and bad that he has to.I have never relied on doctors and have always done my own research. People are fallible.

  5. med·i·cal
    ˈmedikəl/
    adjective
    adjective: medical

    of or relating to the science of medicine, or to the treatment of illness and injuries.

    Well obviously strokes do not belong in the medical category, there is no treatment.

  6. While that’s true that there is no treatment that conclusively works, people can and do get better by degrees and its important to know that. I am 4 years post stroke and I am much better. Am I perfect, certainly not, will I ever fully recover? I don’t know. I am learning how to live with ambiguity, which is always uncomfortable. Initially my neurologist told me I would get everything back, which was not that helpful, since I haven’t, Does that make him a monster or an idiot? Not really…just a person who didn’t feel able to say I don’t know.

    • Oh absolutely, I don’t want to make it seem like I’m not for getting an advanced degree, there are just some things that certain people just don’t know no matter how much time they spent in school. And there are some things that are being done very very wrong, especially in the medical world.

    • Yes, yes, Marta. I was told I’d recover completely because of my age (52), and that MOST recovery happens in the first 6 months. Well, none of that has been true. I’m now 5 years post-stroke and have improved a lot, but have a long way to go. My left hand is useless , and my leg is a a slow-moving prop.

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