I had lunch with a lady earlier this week to discuss options for her brother, a stroke survivor.  We were talking for a while and she asked “so what are the options for stroke victims?”  I responded “there really aren’t any.”  There aren’t.  And it makes me so upset and angry that I could just spit.  And I do sometimes.  When I had the stroke, I had health insurance at the time that approved 20 visits of physical therapy per year.  This was 20 approved visits of therapy whether I was seeking treatment for a sprained ankle or a stroke.  Umm.  THIS.NEEDS.TO.CHANGE.  “Lucky” for me, I had the education and knew what to do therapy-wise, and for some reason of which I have no idea I had the inner drive to actually do it.  It is utterly absurd and atrocious that some insurance companies do not differentiate between diagnoses and the same reimbursement will exist whether it’s for a broken finger or a traumatic brain injury.  I think I’ll write a few insurance companies some letters about this.  Since I am all about writing letters and agitating people and since I have a writing skill or two, I think I’ll make that my next project.  It is also utterly absurd that meditation is not a part of mainstream medicine.  I need to stop writing and go meditate, I’m getting too angry.

Please go here for a better, affordable alternative to learning Transcendental Meditation.

Dean, have a great trip.


Categories: Brain stuff, Health, Recovery, Rehab, Stroke stuff

Tags: , , , , , , , ,

3 replies

  1. I was luckier than most with 75 visits per calendar year when I had my first stroke but there was no difference between ST, OT, and PT so they were used up way too fast after only staying 3 weeks inpatient rehab. Thanks to Obama care my sessions are 40 a tear and that’s better than most insurances pay. I’m thankful, but it still isn’t enough.

    • I was super lucky because my insurance was and still is unlimited therapy based on…..here’s the catch….”medical necessity”. I made damn sure they were going to document a medical necessity until I was pretty darn good though and I fired my first team early on when they started calling me “functional” when I was still all screwed up. My insurance is/was pretty expensive but it covers more than most and I can go anywhere in the world….which was lucky because my surgeon was out of state and if I needed to I would have traveled outside of the US for the best surgeon… Since my surgery was planned. But even with the best insurance and the best care, I still can not find anyone that knows crap about this fatigue or how to fix it. Yes having a stroke sucks!!!

      • Elizabeth,
        My insurance wasn’t/isn’t cheap either. Hate the term functional. I usually don’t have a problem for the medical need aspect. My doctors are pretty savvy a about figuring something out. Mine covers all over too just the payout is different with global rated at 70%.

        Fatigue is a whole ‘nother ball game. I’ve still got to plan my day very carefully. Although I think I’m up to fourteen spoons a day after 3 years. Maybe not, it’s just better planning on my part, but I can do more.

        Stroke survival is the pits and there is no plan on how to get better. But there are worse alternatives.

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