One major thing I learned the first few years after my stroke is that depending on who you talk to, you’re going to get an incredibly different impression of life after stroke. There is a gigantic difference between talking to someone that’s years out and someone that this recently happened to, whose life is newly devastated. Giant difference.
I received an e-mail a few days ago and it made me remember how helpful this place could be. Talking to me, which I will be glad to do anytime, is going to be a lot different than talking to someone in the midst of all the hell. Not that I don’t remember the pure hell that was my existence for those first 2 years after the stroke, but I’ve worked INCREDIBLY hard, I’ve done A TON of research, I’ve not taken crap from some people and cut some people out of my life that were hindering my recovery and I have managed to get back to a quasi-normal life. I got married, just celebrated my 1st anniversary, got back to doing a job that I love, and am going to move to sunny Florida very soon. Things are good.
I’m way past those initial feelings of utter hopelessness. Those first couple of years post-stroke were absolutely horrible and often when I think about it I’m shocked that I voluntarily stayed in this world. But I did. The hell stops, life gets back to quasi-psuedo-normalness for most people.
I wanted to write this post for the person that e-mailed me and anyone else who is newer to the trauma. Connecting with others going through a similar thing helps a lot. For me, it was really helpful to talk to other younger people that this happened to, whose lives were turned upside down and inside out at a young age, I was 30 when it happened. It helped.
Here is the e-mail I received…..
Do you still use this blog? I wanted to contact you because my husband had a cerebellar stroke that affected both sides of his brain also. He has been in the hospital for 2.5 months already. He has a long road ahead of him. He’s 37 years old and we have a one year old and a three year old. This is so hard my world has been turned upside down.
I hope to hear from you.
I can give tons of advice, but it won’t be the same as talking to someone in a similar phase of “after-life.” Anyone out there think you’d like to connect with this e-mailer?