About Me

When I started this blog in 2012 I thought my life was over and I said in this ‘About Me’ section that “I used to be a physical therapist.”  Now, I’m back to work as a physical therapist with an ENTIRELY different perspective and treatment methods.

I had a massive stroke at the age of 30.  It’s a lot more common for a young person to have a stroke than anyone thinks.  I could’ve taken a continuing education course about strokes but I decided to have one instead.  I’m getting a much better education this way.

green dress

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38 replies

  1. Thanks for this Blog. My dad had a cerebellar stroke with decpompression and your blog had been helpful! I t has been hard to understand the things he is going through but it has been comforting reading about your experiences as it has helped re-assure my family that things can get better. Thanks again!

  2. Hi there.

    Please excuse any errors in my message – my language skills arn’t what they once were. I had a stroke October 2011 (7 months ago now). Although I have no physical issues (except constant pins ‘n needles in my left foot), I lost the ability to read. It’s something else to try to explain that you have a masters degree but can’t read…

    Over the past few months, I’ve re-learned how to read. My issue is, I no longer recognise collections of letters as words. To read a word, I have to make the sounds of the letters in my head, then recognise each word by the way it sound. It’s not the fastest method of reading, but it’s better than nothing and I get by.

    Anyway, I’d like like to say thankyou for your blog. Sometimes I have a little giggle, sometimes it brings about the stuff that really matters. I just read your article titled “What are YOUR Goals in Therapy?” but I completely misread inpatient therapists as “impotent therapists”… well it made me laugh anyway.

    Take care,
    Mike

    • Thanks Mike….and you’re welcome! Question for you…does it take a lot longer to formulate words like in typing that message or is it just with recognition of words?

      • For me It’s purely visual… I can type away without even thinking about spelling, but as soon as I come to read back what I’ve written that’s where my problems begin… I found that out two weeks after having my stroke – I had to write a letter for my daughter excusing her from school. I wrote it out just fine but couldn’t read it back at all.

        Like I said, I find a way – sometimes I get it wrong, most of the time I get it right – eventually!

      • Weird how the brain works, fascinating, but weird! 🙂

  3. Just wanted to let you konw that this is an amazing site and I know so many people are going to be helped by you and your story. You’ve come so far – be proud of this and know that SO many people love you and are with you EVERY step of the way.

  4. Amy. Thanks for commenting on my blog. You are free to use any of the articles I have written. If you are interested as a PT and stroke survivor to have a demonstration on the Tutor manual therapy system with motion feedback then I am available over skype. Please email me on alan@meditouch.co.il to arrange.

  5. I am an OT who specialized in stroke rehab who continued my education by having a stroke. My stroke that hit the pons which is the bridge to the cerebellum. See my blog at homeafterstroke.blogspot.com. Rebecca Dutton

  6. Amy, Please don’t take any of my rantings personally. I do have a question, can you point me to required textbooks for PTs that cover stroke rehab? Between you and Rebecca now all we need is a stroke impaired blogging neurologist.
    Dean

  7. Amy,
    I think you should bold, underline and make this line extra big: “It’s a lot more common for a young person to have a stroke than anyone thinks.” This is a true comment. I wish there was more information for these stroke survivors. Your blog seems a good place to start. Thanks for sharing your words of wisdom with us all.

    Tara

  8. Hi Amy;
    I’m just another PT who, yes, also had a cerebellar stroke. My blog is at know-stroke.org and I also have been trying for many years now to get the message out about the young faces of stroke. Thanks for your recent post on this important subject. I am curious if you know about our non profit group, The PFO Research Foundation pforesearch.org, we are currently asking patients with PFO’s to take our 2012 survey. I read in your blog you had a possible PFO connection with your stroke as well. Take care and keep up the good writing:) Thanks!

  9. I never knew someone could get a stroke at 30. How did that happen?

  10. Amy, nice blog. I had a cerebellar stroke in June of 2008. My takeaway is that I continued to get better after the first year, something that’s different for everyone. Good luck to you and God bless yinz.

  11. I cannot tell you how great I think your blog is. I found itbecause I was lookin for info on how to get my quad stronger. I pedal and pedal but I don’t think that’s doing any good. My stroke happened 18 mos ago. I did have inpatient rehab for two mos.last month my pt said I plateaued and discharged me. This blog is my ray. Of sunshine

  12. Your blog is great, you are great.

  13. Thanks so much for sharing your experiences. I have a young friend in her early 20s who just suffered a stroke, and it is hard to imagine what she is going through, so it’s hard for me to know how to be the best kind of friend to her. It helps to read your perspective.

    I also have a 6-year-old with Down’s and his physical therapist is AWESOME, but I don’t feel like I personally connect with her at all – never know what she’s thinking. So it’s just great reading a physical therapists’ take.

    Thanks again,
    Alyson

  14. Thanks for the blog. I suffered a cerebellar stroke 6 weeks ago, and just starting to come to terms with the randomness of it all.,fingers crossed for our continued recovery.

    Sean.

  15. Hi Amy
    I have just starting to do some research on Strokes. I had a Cerebellar Hemorrhage when I was 10. It left me with tremors in my right leg and arm. Over the past 40 years i have tried many different medications but nothing has helped. I did not allow this to take control of my life. I started riding horses,got a job working in a fire tower and later working for a telecommunication company, There is very little that I cannot do. I have been asked so many times why I am so nervous. Things definitely get worse for me when i get upset. Even though i have managed to do most things in life , it is the small things that bother me the most. Buffets,not being able to hold a coffee and sandwich at the same time.Shaking hands(mine doesn’t always meet the other persons hand..Anyway, enough rambling. After 40 years it is nice to hear from others with the same issues.

    • Hi! 🙂 It’s very nice to hear that you’ve done all that stuff.

      • Hi, Michael from Australia, another C’Stroke Survivor, actually had a mini stroke, didn’t quite get it, so had another a week later, and then one whilst in the CTscan just to freak out the operator, Dec 2011. Was told 1st ‘bye’, then ‘bedbound’, then ‘wheelchair bound’, now ‘framebound’. My balance isn’t, and a fair bit knocked around physically, brain is ok tho. Have got into multiple exercising, ie BJJ(mat grappling,), Pilates, Treadmill & Forced, same with Rower, Weights (Free & Machine, Armchair Lawnbowls, Balance, Bike, and anything else I can do. Always have challenged myself, now am 53, was training/competing till my strokes with young crowd. Looking for real suggestions, I do like this site, some good info,
        Michael.

  16. Great site, I found it while doing my own research on ventricular drains, specifically after effects, recovery, that kind of stuff. I had an IVH in November 2013 and spent 35 days in the hospital, most of it in the ICU, most of it in an extremely altered state of consciousness, both from the drugs and the stroke, the blood flowing into my brain and damage from herniation. I have no complaints, my stroke was definitely a wake up call. I am 46 and I look at it as a dividing line between how I used to be and how I strive to be now. I feel dizzy a lot of the time, my eyesight is altered, not necessarily bad, just different and my hearing has been altered as well. I can move around well, no paralysis, just weakness from being in bed for too long. I had a ventillator and then a tracheostomy after they could not keep me on it any longer. More than anything I hated the PEG tube and the way it felt, I dreaded the day they jerked it out but it was immediate blessed relief.
    I am trying to get back to work, I get so tired though.
    Do you know anything about KEPPRA? I have been on it for seizure prophalaxis since my stroke. I have not had a seizure, ever, but they said I was at an increased risk because of all of the blood getting into my brain tissue. Next month will make 6 months post bleed, I have to get another scan and then maybe they will take me off of it, I don’t know. Just wondering what you have heard about it. I do not like the way it makes me feel, but I certainly do not want to start having seizures on top of everything else.
    One day at a time, and yes I repeat everything to myself over and over. This is far better than the alternative!

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