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Posts tagged ‘brain’


Walking Bike

I want this both for myself and my future therapy gym.

From Dean.

walking bike for stroke rehabilitation

Massive amounts of therapy available in one intervention.
Upper limb extension.
Hand grasping.
Sensation – Wind blowing over skin.
So why doesn’t your stroke department have this?



This makes me so sad. Figure out stuff for yourself because no one will do it for you. No one figured out anything for me.  NOT.A.THING.  I’ve learned to only depend on myself. Evidence-based medicine sure as hell doesn’t mean what it used to, if it in fact ever meant anything. Once again my heart aches for humanity.  Thanks, Dean, for finding this. And for finding the most research on stroke that exists anywhere in the world.  And the internet.

Editor In Chief Of World’s Best Known Medical Journal: Half Of All The Literature Is False

Well shit, now more than ever we need stroke survivors directing and running the strategy for solving all the problems in stroke.

In the past few years more professionals have come forward to share a truth that, for many people, proves difficult to swallow. One such authority is Dr. Richard Horton, the current editor-in-chief of the Lancet – considered to be one of the most well-respected peer-reviewed medical journals in the world.

Dr. Horton recently published a statement declaring that a lot of published research is in fact unreliable at best, if not completely false.

“The case against science is straightforward: much of the scientific literature, perhaps half, may simply be untrue. Afflicted by studies with small sample sizes, tiny effects, invalid exploratory analyses, and flagrant conflicts of interest, together with an obsession for pursuing fashionable trends of dubious importance, science has taken a turn towards darkness.” (source)This is quite disturbing, given the fact that all of these studies (which are industry sponsored) are used to develop drugs/vaccines to supposedly help people, train medical staff, educate medical students and more.

It’s common for many to dismiss a lot of great work by experts and researchers at various institutions around the globe which isn’t “peer-reviewed” and doesn’t appear in a “credible” medical journal, but as we can see, “peer-reviewed” doesn’t really mean much anymore. “Credible” medical journals continue to lose their tenability in the eyes of experts and employees of the journals themselves, like Dr. Horton.

He also went on to call himself out in a sense, stating that journal editors aid and abet the worst behaviors, that the amount of bad research is alarming, that data is sculpted to fit a preferred theory. He goes on to observe that important confirmations are often rejected and little is done to correct bad practices. What’s worse, much of what goes on could even be considered borderline misconduct.

Dr. Marcia Angell, a physician and longtime Editor in Chief of the New England Medical Journal (NEMJ), which is considered to another one of the most prestigious peer-reviewed medical journals in the world, makes her view of the subject quite plain:

“It is simply no longer possible to believe much of the clinical research that is published, or to rely on the judgment of trusted physicians or authoritative medical guidelines. I take no pleasure in this conclusion, which I reached slowly and reluctantly over my two decades as an editor of the New England Journal of Medicine” (source)

I apologize if you have seen it before in my articles, but it is quite the statement, and it comes from someone who also held a position similar to Dr. Horton.

There is much more than anecdotal evidence to support these claims, however, including documents obtained by Lucija Tomljenovic, PhD, from the Neural Dynamics Research Group in the Department of Ophthalmology and Visual Sciences at the University of British Columbia, which reveal that vaccine manufacturers, pharmaceutical companies, and health authorities have known about multiple dangers associated with vaccines but chose to withhold them from the public. This is scientific fraud, and their complicity suggests that this practice continues to this day. (source)

This is just one of many examples, and alludes to one point Dr. Horton is referring to, the omission of data. For the sake of time, I encourage you to do your own research on this subject. I just wanted to provide some food for thought about something that is not often considered when it comes to medical research, and the resulting products and theories which are then sold to us based on that research.

It’s truly a remarkable time to be alive. Over the course of human history, our planet has experienced multiple paradigm shifting realizations, all of which were met with harsh resistance at the time of their revelation. One great example is when we realized the Earth was not flat. Today, we are seeing these kinds of revelatory shifts in thinking happen in multiple spheres, all at one time. It can seem overwhelming for those who are paying attention, especially given the fact that a lot of these ideas go against current belief systems. There will always be resistance to new information which does not fit into the current framework, regardless of how reasonable (or factual) that information might be.


The Lancet


How to Cheer Up Stroke Victim

The title of this post was a search term on my blog today.  ‘How to cheer up stroke victim.’  Ummm, I’m sure the person that wrote this is newly devastated but I’ve been dealing with this crap for nearly 5 years and I’m a bit jaded.  It’s wonderful that someone cared enough to search that.  I’m pretty sure that something like that was never searched for by the main players in my life on how to deal with me and interact with me.  You really can’t cheer the person up, maybe you can, I don’t know.  For me, I just wished I had died.  The most you can hope to do within those first couple of years after a brain injury is provide fleeting moments of joy through laughter, perhaps through Grumpy Cat pictures.  This was the case for me anyway.  Maybe there are other stroke survivors that didn’t badly want to be released by death from the hellish existence they were forced to live.  I did.  Does anyone else want to comment on how you may have been cheered up?  I couldn’t be cheered up.  I was in a deep, deep, deep depression and had lost any and all hope.  The fact that I was able to pull myself out of that is quite amazing.  It’s pretty much all up to the individual, I think.  You can suggest all kinds of things that you think would help, read my blog, read Dean’s blog for all kinds of suggestions.  But you can’t do anything for the person, you can only recommend stuff, and hope they oblige.

But I’m going to do a post soon that is quite the opposite of the message of this post and tell recent strokees that life can get better, way better.

A side note, it has been said by Dean that e-mail after e-mail goes unanswered by the ASA and NSA.  I have sung the praises of Peter G. Levine’s book Stronger After Stroke, have recommended it to a bunch of people and have been a big supporter of his blog and have it listed on my homepage under ‘The Most Important Recovery Links You Need’ category.  And I have no plans of deleting it.  I still think this book is the best one that exists about stroke recovery right now.  This will change when I write a book.  But multiple e-mails of mine to him about meditation have gone unanswered and meditation is only briefly mentioned twice I think on his blog.  I can provide thousands of research articles about the benefits of meditation on the brain.  A plethora of evidence that would take months to read through.  Is anyone out there genuinely trying to help people without expecting anything in return with no personal agenda?  My heart aches for humanity right now.

Please go here for a better, affordable alternative to learning Transcendental Meditation.

To try to cheer up a stroke victim…..

IMG_1342   forgive  gcmfer


Meditation: proven science – very, very, very proven

Meditation: still considered an “alternative” and “complementary” treatment

Meditation: not at all a part of mainstream Western Medicine, only Eastern Medicine

Meditation: thousands upon thousands of research articles proving how it positively affects and changes the brain

Meditation: might just be the absolute best, scientifically proven intervention for healing the brain that was never recommended to you by your doctor.  Certainly wasn’t recommended to me and every single other stroke survivor that I have ever met.

Please go here for a better, affordable alternative to learning Transcendental Meditation _________________________________________________________________________________

Original post from Dean’s blog……

Harvard neuroscientist: Meditation not only reduces stress, here’s how it changes your brain

But I bet your doctor doesn’t have this as a stroke protocol.
A couple of lines from there. Why the hell doesn’t your doctor know about this? And prescribe this? Are they that clueless?We found long-term meditators have an increased amount of gray matter in the insula and sensory regions, the auditory and sensory cortex.We also found they had more gray matter in the frontal cortex, which is associated with working memory and executive decision making.Q: So how long does someone have to meditate before they begin to see changes in their brain?
Lazar: Our data shows changes in the brain after just eight weeks.


This post is for my family, friends, anyone that has had a craniectomy and their family and friends.  Something was said to me yesterday that made me realize that I have not been more than abundantly clear about something the way that I thought I have been more than abundantly clear.  I was speaking with someone about how sometimes it hurts when someone touches me in the wrong spot on the back of my neck because of the brain surgery.  She said, “but the surgical area would be healed by now.”  Let me be clear.  The brain surgery that I had is called a Decompressive Craniectomy.  ‘Ectomy’ means removal.  A part of my skull was cut into and REMOVED in order to allow my brain to swell after the stroke.  In some cases when a craniectomy is performed, this piece of bone is put back.  In my case, it was not.  The area of my skull that was cut out was not replaced by the piece of bone that was removed or by anything artificial.  I literally have A.HOLE.IN.MY.SKULL and will have A.HOLE.IN.MY.SKULL until the day I die.  So, it hurts sometimes when pressure is placed there.

Here is a pictorial description of my surgery….



Here is what the back of my head looked like when I became conscious again and woke up after surgery…..



Sorry if these pictures disturb you but deal with it, I certainly have had to.